It's almost time

So the doctors are thinking that they might try to send the girls home next week. They are both doing really well in their feedings. I go and feed them now 4 times a day. The other 4 times are are still tube fed. We have decided that we will do both nursing and bottle feeding. I will nurse one and bottle the other and then switch on the next feeding. That way they are both nursing and bottle feeding. I have to do both because i just don't make enough for two babies. Jade seems to do ok with both so far. She is the type that she doesn't care how she gets food as long as she gets to eat, tube, bottle, or nursing. Sofira is still getting the hang of eating. She will down a bottle in no time and she likes to nurse. With Sofira nursing can be a long process. She is not one to just wake up and eat. She likes to talk with ya, look around, and then eat. So it's nice because Jade is so the opposite. Once her eyes are open there better be food waiting for her or she screams. So i figured I would feed Jade while I was talking with Sofira. That way everyone is happy and gets their needs met. 

Right now I am excited and a little nervous for the girls to come home. I really want them to come home, but I know there will be yet another big transition in our little/big families lives. The doctors will be sending them both home with oxygen and monitors to help us watch for their little apnea episodes. Which I am glad, otherwise I wouldn't get any sleep because I would feel the need to watch them all the time to make sure they are breathing. The oxygen is mainly for eating purposes. Both girls tend to breath less when they eat. The oxygen will help them to maintain higher levels of oxygen in their bodies so they have enough energy to actually eat all their food. If the oxygen levels fall to much then they spend more energy breathing so they have less energy to eat. 

I know that everyone really wants to see the girls when they come home. And, I wish that i could throw a big coming out party. But, I can't it will have to wait till April. The girls will have to be kept in the house all winter. We can't have visitors in and we can't take them out. We have to really careful to make sure they don't get sick. A little runny nose is not much for a healthy person, but a little runny nose to the girls could put them back in the hospital. I hope that i can help them stay healthy with my milk, but they were really early and their immune system is still weak. So we will love ya'll from a far for a little while and then we can party when RSV season is over. 

An Update for my Bro

My 4 whlr isn't fixed yet...

Oh wait you wanted more info about the girls sorry my bad.

Everything is about the same with the girls they have been working on there nursing. Beth and I are debating wether to just bottle feed them since it will be a lot easier on Beth and since she isn't making enough to feed them both. We will see I guess. Jade was able to nurse a full feeding a couple days ago. It tuckered her out pretty good though and she hasn't been up to much nursing since. Sofira is coming along as well, consistently nursing about half her feedings.  Sofira is still on the cannula since the acid reflux thing. They took Jade off her monitors since she didn't desat for 24 hours. Beth and I promptly complained and said to get it back on, good thing too because she has started to have trouble again, so much so that they are threatening to put her back on the cannula as well.  I guess thats the joy of having new nurses that go by the book instead of by what the girls really need. We miss our nurses from Nursery A that knows the girls (and us) a lot better, they come over and work in B when they can but the LPN nurses can only work in B so if there are too many LPN's on our primary nurses don't get to come over.   Speaking of primary nurses its kinda funny how they tend to fight over which of them gets to take care of our girls. Hmm, popular already i'm really gonna have to get a shotgun for when they get in high school I guess. 

Told ya so

Hi it me Beth,
As the girls moved to nursery B the doctors decided to try the girls off their reflux medicine, to see if they really needed it. And Yes, they do. The girls have been having a tough time in the last few hours. They both had to undergo a reflux test to see how much and how often they reflux. Poor things had to have tubes put down their nose and be hooked up to a computer to record a 12 hour period. So, from the test we learned that the girls are still having bad apnea with each reflux episode and they reflux quite often. With all the reflux the girls had to go back on some air. It is a very small amount but they do need a little bit of help breathing.
As their mother I knew that they were still having reflux and was hoping that the doctors would just keep them on the medicine. But we got to do what we got to do.
On top of all the reflux they also had another eye check-up. Their eyes look good. But both girls were just wiped out. They were so tired and exhausted. I hope that they will sleep well tonight and be happy and awake tomorrow. Only time will tell.

Eating well

Both girls are able to nurse half the amount they normally get through the tube, so they are both doing really good. Sofira was desating while nursing so we are giving her a little air with a blow by tube to help her out and remind her to breath while she eats. By doing that bumped her up to what Jade is currently doing of 24 cc's,  they eat 48 cc's a feeding  (1.5 oz).  So we just have to keep working there little mouth muscles and so forth to get them to be able to endure through a whole feeding.  They are so fun to hold now without all there wires and tubes and things on. I realized that I haven't put a picture up since they've been off the air so here is a few cute ones of them.

Nusery B here we come!!!

They moved the girls over to nursery B today!!!!  Nusery B is basically for babies right as there getting ready to leave.  The doctor called me today and said he is thinking Sofira might not ever nurse and that we might just have to go directly to the bottle.  I disagree however, since she already has nursed and is slowly starting to get it.  We learned the other day that Jades eye surgery may not have been enough and they might have to go in and do it again. We are waiting to see how the next test goes to know if they will do that.  Sofira's eyes looked great.