Down with Acid Reflux

Hi it's me again, Mom
So everything is going well. The girls are still trying to learn how to breath. Which they are getting somewhat good at. The weight is going up slowly and they are both starting to be more awake during the day. I love to see them awake and trying to look around.
Our big battle right now is the Acid Reflux. Sofira does not have it too bad. She gets maybe one or two episodes a day or so. Jade on the other hand gets really bad reflux during and after every feeding, which is every three hours. Both are still on the feeding tubes. Sometimes she gets it so bad the the nurse will have to hold her upright while she is eating and then try to prop her up after. But nothing seems to be working yet. The doctors told me that they were going to try to reduce her feedings again to a continuous feeding all day. Right now she gets 1oz of milk over a 1 hour period. Which is really slow. So they will try to put Jade on low pressure breathing again and feed her really slowly to try to help her heal a little and try to stop the reflux. There are some medicines that can help her, and she is taking them, but they are not working the best. Really what we are all waiting for is for her to outgrow it, just like a few other things that we have had to face. Unfortunately the reflux has now pushed the nursing stuff back. They want me to wait to try to begin trying to teach Jade how to nurse till after the reflux settles down. Which might take a while. (so frustrating) Sofira still can not begin the nursing thing till she gets off the CPAP. So we will all just sit and wait and see what happens. But I have to say pumping is not fun, I need to pump but I don't like it. And I was kind of getting excited to see that maybe Jade was going to be ready, but no the reflux had to take it all away. Down with Acid Reflux.